FDA Letter to approve drug treating Friedreich’s Ataxia

2020 was hard for everyone. I know I. am not the only one with problems. I have depression due to FA. People say “Friedreich’s Ataxia doesn’t define me, my mind defines me.” My ego has been torn up/destroyed because of this reality. I’m real as it gets. There is a drug called Omaveloxolone by a […]

Reminders are always good.

I have been preoccupied this week as that Surelock break came in the mail on Monday. Took it apart piece-by-piece to figure out how the system works and then put it on the chair. Like everything that happens to me, two pieces are literally a hair off measurement so the thing does not work. With […]

Walkers.

You see, the walker I used prior where the cheapest walkers consumers can buy; Nova brand walkers. I started to use one in September 2010. Friedreich’s ataxia causes quick jerky-like movements; as a result I cracked 3 of them in the same spot. Now note Nova walkers are made in Vietnam- not sure of it […]

Manual Wheelchair Brake Options

I have been using basic manual wheels for the past 4 months. While being ‘handy’ doing light maintenance such as: checking for loose screws/bolts, tire pressure, cleaning the frame, cleaning the ball bearings from the caster wheels in the front from hair, and replacing worn-out pieces- the thing is constant upkeep. On top of all […]

Dishwater

Everyday I drink Black Tea; Lipton brand specifically. For the past 5 years or so I have been consuming it and honestly the taste is awful. I have added Honey before (The good ‘natural’ kind from Whole Foods, not the cheep artificial corn syrup stuff.) and I never put it in my tea right. The […]

DogFest Portland

I have always wanted a dog ever since I was a kid. My family has never been pet people. I totally understand why. When I was 15 years old or so, I convinced my mom I could take care of gold fish. At that time I got a small 2-gallon tank, a few gold fish, […]